Lipedema Awareness

Recently, the singer Doja Cat shared that she has been diagnosed with lipedema. Lipedema is a connective tissue disorder that results in fat cells being surrounded by fibrosis. It is often painful and because the fat is trapped in hard nodules, it does not respond to weight loss.

Lipedema is very common among women, affecting at least 11% of all women (although that number is likely higher). Recognition of lipedema as a disorder is just now starting to get attention. Even many medical providers don’t understand the condition, and it is often misdiagnosed as obesity or lymphedema (although both of these conditions can also exist alongside lipedema). This means that many women have spent years dealing with this condition without the knowledge and support they deserve.
Here is a brief summary of what to look for if you think you have lipedema: Generally, your hips/legs will be the biggest part of your body and will be resistant to weight loss (although it can occur in arms and torso as well), you will usually feel nodules inside your fat, and the nodules will often be painful to the touch. You may also have general aching or restless sensations in the affected area.

There are many other symptoms as well, so if this sounds like you, I highly recommend that you read this whole article, which has a great overview of lipedema, and pass it along to anyone who might find it useful (including your pcp). If you suspect lipedema, please look for a *lipedema expert*, as many medical providers are not familiar with lipedema. Obesity medicine/endocrinology, and vein specialists are the most likely specialties to provide this diagnosis.

If you have any questions about lipedema after reading the article, you can find more information at the Lipedema Foundation website. I am also happy to try to answer questions or point you in the right direction. While I am not an expert, I have spent several years researching this disorder and keeping up with the latest developments in research and treatment. I hope that this article is only the first step in bringing more awareness to this and other under-diagnosed conditions.